May 14, 2014 - I hope I didn't offend you.

I hope I was not too crass. I hope I was not too “out there”. I hope I was not too in your face with my saga. But most of all I sincerely want you to know that in no way did I want to offend you. I’m sure I did in some small or maybe even big way. I spent day, months, and now years talking about the breast. I named them (boob 1 and boob 2). I cartooned them and gave them personalities of their own. I made fun of them and their quirkiness. I described them in great detail leaving very little to the imagination. For those of you who have never faced mastectomy, I may have brought some humor to your day or provided some insight to something currently foreign. But, I realize this may be too much for older generations not used to such open and public discussions of anatomy. I realize this may be too informative for those just trying to go through everyday life.  I also realize this may have come across as trivial or lighthearted to someone in the middle of the fight against breast cancer. You, who are just trying to make it through the moment, unable to live by the big picture, but rather wrapped up in the struggle of trying to simply get to the next hour these words in this series may have done you, so very dear to my heart, an injustice. I had no intentions of offending you. Though I realize intent does not always change perception.

When I started this blog, I so very desperately wanted to give you insight without fear, into a rather difficult choice. If you know me outside of this screen, you also know I tend to attempt life with a positivity and jovial demeanor at all costs. I truly believe that life can be traveled more effectively when approached with a grateful heart despite circumstance, purpose and humor. So it is only natural that I would find consolation and hope in the personification of the breast. “Impostor” made this silicone container tangible. “Boob” made this synthetic replacement more endearing. It allowed me to project love and acceptance onto something I feared I would very much reject, detest and blame. It seems very trivial as I did not in fact have breast cancer, but taking off the epitome of all things female turned out to be very real and more challenging than I ever imagined possible. These two seemingly inconsequential sacks of adipose carried with it the sense of sexuality, the emotions of completeness, and the security of self. One never really understands that until she finds herself laying on that table in the operating room. So when you find yourself struggling with up from down, you seek out ways to process, connect, and cope for fear that the opposite prevails. For me, that came in the form of writing. I couldn’t speak these words in person. Just as soon as you approached me I found myself desperately seeking an out. But on this page, I could process trying on 13 bras that no longer fit, unstoppable tears over a concave chest, and the surreal aftermath of what I had just done. I could better understand why something that on paper seemed trivial, in reality sent me into a whirlwind. No one can prepare you fully, though I desperately wanted to try and do that for you. There is power and triumph in camaraderie. There is healing in “I have been there”, and there is validity in encouragement. You may have thought me attention seeking, but my intent was rooted in healing and empowerment for myself and those already there or yet to come.   I chose to be transparent. I sought to be candid. I risked offending someone simply so I could become better on the other side.  And above all I wanted you to know there is no shame in mastectomy. There may be tears, there may be ongoing bewilderment, there may even be a little laughter when you find yourself piled up on 14 pillows and still unable to find a sleeping position that even remotely resembles anything worthwhile, or hilarity when you pass by a mirror and quickly walk back to see who that was. But there is no shame.

Mom, I apologize for publically airing out our dirty laundry of caregiving (you took it is such great stride!) Grandma Sarah, I apologize for saying words your generation would never have dreamed of uttering in public. Ron, I apologize for taking the personal and making it anything but (and for taking you through the most overwhelming emotional roller coaster. I don’t know how you did it so well.)  Women who are facing a terrifying path of navigating breast cancer, I apologize if my words brought you any offense. I don’t make light of or take for granted a single moment of fighting for your next second as have been there myself with lymphoma. Instead, I hope you find that every event in life can be navigated with a head held high. That God can repurpose any possible moment, no matter how devastating, into the most incredible impact either for yourself or someone you come in contact with. We simply have to be open to the possibility. And if cartooning a breast into an Imposter gets you to the next day, then cartoon away! Instead of offense, we might find laughter and triumph. So please know I’m cheering you on to your next hour!  I’m laughing us through the awkward. I'm advocating for the pillow wedge to keep you safe and upright when the 14 pillows slip off the side of the bed.

All implants unite in advocacy for a head held high during mastectomy. Mine included.


P.S. I’ve made it past surgery #4 related to this mastectomy with flying colors. Almost 3 weeks out. The pain is more than tolerable and really only when I reach for something or hit the counter top which I seem to do on an all too frequent basis (smile).  Bruising has faded to a luxurious yellow green and incision sites are closed. Another notch on my mastectomy post. Conquered!

May 5, 2014 - Day #7 Post Op Bruising (Warning: Contains pictures)

Day # 7 post operation and you can see below one of the lingering spots of bruising on the abdomen. This spot is about the size of half your palm.  Again, I ask myself why anyone would want to choose go this route for cosmetic reasons, but I guess maybe the means justifies the end? Also, I guess none of us truly know what we would choose until we are in the situation. No judgment here, just saying boy is it a full week of uncomfortable and some nasty bruising. I share this picture as an FYI for anyone who finds that they need this procedure following reconstruction.

Each day is better than the day before and I can actually walk upright now and with some sense of normal speed without someone asking me why I'm all hunched over going at a snails pace. I do guard myself a good bit though since yesterday I accidentally brushed up against the counter and sent my pain receptors into terrible disarray.  Rule of thumb for daily activities: Keep everyone and everything at arms length. I couldn't push the grocery cart, but I did go grocery shopping with Ron after work today. I have to remind Ron that I still can't vacuum. I think that should last several months at least. (grin)

As a side note:  it's odd to go in for breast surgery and end up having another part of your body hurt more than breast.  Almost there!



May 1, 2014 - It's time.

Just a quick update that as of our check this evening Franklin (the red spot) is stable and doesn't appear to be growing. While he also isn't receding, I'm quite confident I am not dealing with cellulitis as it certainly would have expanded into badness by now. I'm hopeful instead that maybe he is skin a reaction to tape or something of that sort. Currently, he sits covered in dots outlining his border to ensure we know if he expands. Totally wish you could have been there for that comical event- me lining myself up in a mirror and applying dots to his border with a black Sharpie Marker. trying to do it correctly since I was looking at a mirror image. Easier said than done, my friends. You can't make this stuff up. Or also there with me tonight when Ron saw what he thought was a tape string left over from our bandage removal earlier in the day  and decided to yank it off. He quickly figured out his mistake (when I let out a rather intense yelp) that he had just pulled out a suture (stitch). Holy Moly! Saying ouch is such an understatement. After the tears dried up we laughed (sort of) at the "how could that happen" moment. The night before it was crazy talk about salsa. Tonight pulling out a suture. The new rule, ask before removing. But I am so grateful that we are still laughing.

It's time, according to the "outline for what you can expect following lipomodeling surgery", to get back to life. I am packaging up the Impostors and taking them and my bruised abdomen to work tomorrow. I don't know who made those rules of time schedules but I am quite confident it was some medical person who had never actually had this procedure done to them. In fact, I was recommended to go back yesterday in the  formal standardized paperwork. Are you kidding me? I couldn't even contain my drool (exaggeration) yesterday. Well, I decided to give in and make it happen on the 4th day. I'm actually super nervous about driving and about my stamina. I just don't have any reserves this week. Everything is an effort and I crash and burn after any little thing. I'm still blaming the anesthesia- well that and the fact that my body just went through a less than pleasant ordeal only 3 days ago. Then there is the little known fact that very few people on this side of my job know what is going on. So it's going to be rather odd seeing Hunchback Sally saunter at a snails pace through the hall. I envision a good many questions. What is also going to be weird is that I work in the exact same building and the same floor (just separated by a wall) from the OR suite I had surgery in. That's strange in and of itself. Rise to the occasion, pick up your chin, high ho, high ho and follow the paperwork instructions.

This is all very close to being behind me. One more notch on the Impostor rope.

May 1, 2014 - Introducing Franklin

Yesterday has been my worst day by far. For whatever reason I am taking forever to clear out all of the anesthesia. I'm even laughing at myself walking around in my zombie like state. It seemed to be never ending. This grey fog floating around in my head making every task 10 times harder than it had to be. By mid day, I gave up fighting the fog and just slept the rest of the day away. I THINK I might have less of that fog today. It sort of comes and goes.  I woke up feeling about 75%,  now I'm back to 50%, but high hopes for the afternoon. One positive note is the abdominal pain and chest pain is a good bit less today. So that is a huge score. Hopeful tomorrow I can go to my office job and start swinging back into life again. I'm ready to have this notch on the boob rope float into the past.

While my mental fog is somewhat less, we have a little spot we are watching on Boob 2.2. I have the overachieving ability to become a foster parent to spots. You will recall a spot last October 2012 when we introduced you to Barkley. Barkley had planted himself at the bottom of my incision scar and worked in a desperate attempt to make me miserable. He finally did seal  himself over after a few weeks, much to everyone's delight as we were afraid he would be a source for infection. He came, he went, and all was happy. Then in April 2013, THE SPOT make himself known. Full blown cellulitis that spread in a 12 hour period to cover the entire right breast leading to emergency surgery and the replacement of Boob 2 with Boob 2.2. Three weeks of antibiotics and good bit of frustration later, the spot was terminated. I have a lot of spots currently, some are incision marks with stitches, but the most are deep purple bruises scattered about. But there is this one spot that is like no other-  Spot #3,  introducing Franklin. Ron found Franklin last night when we were switching out bandages. Me squealing with every tweak of the tape. I hate removing bandages. I feel sure you had picked up on that about me before. I used to be a rock star with anything medical, but since the mastectomy I don't tolerate my very own medical procedures so well. Well after the squealing on my part, Ron finds Franklin perched in the outer quadrant of Boob 2.2. He measures about 1 inch x 1 inch and is the perfect deep red color of cellulitis. I snapped a picture of it and sent it to Lead Plastic Surgeon for some input. Gotta love tele-medicine. He replied that he too didn't know exactly what Franklin was but that we needed to watch it very closely for any sign of change, growth, or fever and we then head straight to the ER. I have to say I am not that worried about it. That's because it hasn't grown in 12 hours. And remember, last time in 12 hours I went from a 1 x 1 spot to an entire breast becoming fire engine red and painful. None of that here as of yet. I can't even feel the spot, so I am very hopeful it's just a reaction to something. Franklin will be my friend instead of my foe. My star foster child.  But at the same time  I have no problems at all with each of you praying Franklin to a new Foster home. I've enjoyed my time with him and now I am ready to release him out to spread his wings on on his own. For my sanity. I will also add that my surgeon is out of the country right now and if this thing progressed, I would be working with a substitute. Not that I don't have faith in that new person, but me a lead plastic surgeon have come so far and I'd like him to stay on board with anything that might arise. He's has promised me an ongoing contract of "best work ever" and I have worked hard to hold him to that promise. No guarantees for the substitute. Ok, so I'm not going to think about it anymore. Done! But I sure do wish you guys could see me and Ron with his engineer scale ruler drawing a box around the spot. You would get a great chuckle. The things he and I have had to do during this boob journey. At least we can still laugh. And at least he didn't yell out again "it looks like salsa!"

Oh what fun it is.