April 17, 2013 - Boobage


April 17: I’ve been carrying all this Boobage (baggage) around the last few days. Saturday I found myself in a funk. It resolved Sunday morning only to creep itself back in with a vengeance Monday. It did not help that I went back to work (work from home due to the infusions) Monday and instead of easing myself back in, I worked 10 hours that day. Everyone keeps saying “take care of your self”, “slow down”. Well that is easy to do under any other circumstance than the one I find myself in now at my job. Monday, it was one thing after another and it just kept building up and building up until when my friend, Cassie (name changed to protect the guilty), came by to bring meal. I opened the door, saw her sweet face, and busted out into tears. Nasty tears! It didn’t help that the previous night, I noticed that boob #2.2 was again feeling warmer than it’s mirror image boob #1.  And that’s how all of this started 2 weeks ago. Ron and I went to bed very fearful that the infection was returning. (Thankfully, that comes and goes and is not a constant symptom, so we feel more safe). And then came the waiting to see how that would unfold. Combine those emotions with a super busy return to work and I was a not so faith-filled Sally. I was just having one of those days, make that 72 hours, and I couldn’t part with those emotions. Boobage! And it didn’t help that in that 72 hours I turned 38. I’m not used to this waxing and waning in positivity. I’m pretty rock solid on that. Make that "Was".

I found myself back in the breast clinic today for my first post-surgery follow-up appointment. I do not miss that waiting room. I do however still hold my respect for the women in that waiting room. Despite that respect, I had been super happy-go-lucky for the past 4 months not visiting that location except for professional purposes. I had finally moved on, successfully parted with the emotions that linger post mastectomy. They weren’t fully gone, but they were part of my historical journey. No longer a day-to-day play-by play that invades your every hour. I no longer thought about boobs around the clock. The imposters had incorporated themselves into my person. So to find myself back in the drama of mastectomy again was rather unsettling.  I simply wanted to be done. I was done. Now, I’m here again. It’s different, but vastly similar. Similar enough to be more than uncomfortable. And then there were the gowns. And the show-and-tell. And the cold room.

Lead Plastic Surgeon was pleased with the progress thus far. He noted some irritation/redness around the stitches, but we are just watching that. And the swelling.  Always the swelling. (Will that ever go away?) I think I was set back 6 months for the swelling. Then he commented casually “we are not out of the woods yet”. The true test will be when we stop the antibiotics next week and it will go one of two ways. Continue to improve no problems. Infection returns because it’s stuck in the deep tissue around the High Profile Smooth Round Gel Implant. Have mercy if that were to occur. I don’t think I care to go through a 4th surgery for these boobs. And he even said he wasn’t sure he could do his “best work ever” a third time.  That was just tempting fate! I promised him all would go well. He promised me. And we left with that Pact on the examining table.  I never break a promise. Let’s hope he has that same character trait.

Boobage, be gone! I have no place for you. I’d rather be filled with over flowing gratitude. It will return again. It always does. It’s lurking just under the surface.

April 14, 2013 - Castor Oil

April 14: I talked Ron into us going to church last night. It was a terrific idea on paper. I needed a pick me up as I had landed myself in a very foul mood earlier in the day. The reality of what had happened had finally sank in. Whether I had been in a bit of denial or whether I was just riding the energy of the fast paced week eludes me, but whatever it was came to a quick halt Saturday morning and I was fully aware of the current circumstances. I thought a visit to church would provide the swift kick in the hiney I very much needed. A reminder of God's provision and grace. Well, I accomplished reclaiming that reminder, but also found myself very overwhelmed. That's one of my downfalls, I try to rush through the moment. Get this nastiness behind me, be better than I am, heal quicker than the body allows. I wanted to be back in the normalcy of the life of 10 days ago. If I think I'm well, I'm well. I'm also an idiot. I'm not well. Last night was a quick reminder of God's provision, but also a dose of reality that I am walking around life with a PICC line, a whole in my side from where a drain once thrived, and stitches up the front of Boob 2.2, and I'm tired. Very tired. I had gotten rid of Tired back in December. Kicked to to the curb. Well it must have just been lurking next door waiting for an opening. Tired likes me. I dislike tired.

Speaking of the PICC line- because I'm infusing 7 hours of antibiotics in across my day, I find myself performing said infusions in the most unlikely places. Sitting watching a play or more strangely in the car on the way to church. Ron and I had a chuckle when he parked the car, got out, turned to look back in to ensure the doors were locked and noticed the front seat looked very much like a drug cartel's haven. "RON! If we got pulled over by the cops, we would have a very difficult time explaining all the syringes and lines strewn across the car." They certainly know how to kink a day. Ron starts them when he firsts wakes up to allow me a few more minutes of snooze. Once the first one finishes, he hooks up the second and then I finish everything out with flushes and such 3 hours later. Well today, I was eager to get up and get my shower to get the day started. Got to the bedroom, gathered my supplies, called Ron to bring the Press and Seal and tape to wrap my arm (it can't get wet) only to remember I still had an antibiotic infusing and I can' shower while it's infusing. So my shower had to be delayed until 11 this morning. And here lies my dilemma of how in the world do I get this to function in a way to where I can go back to work? And I still haven't allowed myself to drive. I'm terrified of driving. I don't want to hold arm adjacent to 2.2 up on a steering wheel for a 35 minute commute. And a seat belt can only go so many places. And walk around the office with a pump? I'd like to think I am bigger than all of this and it can be done, but I'm struggling finding a way to fit a 3 hour infusion, a shower and getting dressed, and a 35 minute commute in to the morning, then a work day including a 45 minute infusion/flush followed by a 35 minute commute home, dinner, and a 3 hour infusion into a 12 hour awake day where I still function and produce anything worthy of calling it a result.  So instead I'm working at home next week with the exception of the two followup appointments I have. I tend to get more accomplished at home anyway and since I have crazy deadlines coming up, maybe it's a win win. But I admit I feel defeated in that. I want to be able to juggle it all with flying colors. I want to be THAT woman. Isn't it funny how we are the very first person to call ourselves inadequate? God needs to kick me around a little bit more to remind me he chose/allowed this path and I am to do my best. That's it. Just my best. Well my best is here at home in my pajamas working weird hours around weird infusions and laughing at the value of Press and Seal when it comes to keeping a line dry. Score!

It's my birthday. I called my mom last night to ask her what she was doing this very moment at 8:05 pm 38 years (25) ago on the evening before I arrived. "Drinking Castor Oil." (Sorry, Mom!) I think I will take stitches over castor oil. I'm to arrive at 2 pm today (38 years ago). I plan to eat cake at 2 pm. However, it's not lost on me that  I should send my mom the cake. She did all the hard work. I just gurgled and cooed. Well, not quite- we had a very rough go at it at my birth with surgeries and near death for mother and child alike. That's how mom and I do things....with a big ole bang! Peas in a Pod she and I. It's not lost on me that we both at this very minute are walking around with central lines (mine a Picc, hers a port). We both have daily (her's weekly) infusions. And just like so many of you say of me, she is the most positive person I have ever met when it comes to her perspective of her health. I let my positivity wax and wane a bit more than she (yesterday is a testament to that). And no matter how crazy her world becomes, she is still more worried about me than herself. That's an amazing mom. She may fall head first into my coffee table while caring for me (previous posts last Fall), but she moves herself right into my spare bedroom and cares for me all the same. And she does provide a good bit of laughter. Thanks, mom, for birthing me. Thanks for giving up six weeks of your life last Fall all for little ole pitiful me and the new Impostors. Thanks for sitting with Ron while I was spelling out I-M-P-L-A-N-T in a drug induced stupor in the OR waiting room a week ago. But more so thanks for reminding me to keep my head high in the midst of chaos. That bit of advice has served me well. And more than anything, thanks for trudging through it all with me. Two boobs in a pod!

Happy Birthday, Sally.
Happy BIRTHday, Mom!
(I will eat a slice in your honor, it's the least I can do).

April 12, 2013 - Jaded at 38 (25)

April 12: Ron and I are not known for our spontaneity or really even our creativity. I decided this year for my birthday, we were going to make plans so it wouldn't be another "here is comes, there it goes" kind of birthday. I don't want birthdays to become the forgotten day that often happens in the craziness of adulthood.  Shouldn't we all embrace the Elmo birthday cakes of childhoods gone by? In an attempt to do this, but to replace Elmo with something a tad more fitting and less perky, we decided to take a vacation to downtown Raleigh (about 15 minutes from our house for those of you not from N.C.).  Almost a month ago, we bought tickets to see Ira David Wood in "To Kill a Mocking Bird" tonight, then for Saturday we would spend the time downtown scoping our galleries and museums with dinner plans at a new (now old) restaurant downtown called Oro. We'd sum it all up with stay at a local bed and breakfast. I had won the bed and breakfast in a raffle and having never stayed in a B&B before I was super excited for this fun weekend and chance to better explore the very town we live in. Creative, huh? Well, creative for me anyway. I'm turning 38 (or 25 to those of you I've lied to), and I wanted to cushion that with some purposeful excitement particularly considering how crazy this year had been both personally with a double mastectomy and professionally with a project that is running about 350 mph.  So I find myself sad. Ok maybe a little bitter.  Dare I say angry? Nah, not angry. That's a bit much. Jaded, yep that is a good description. I'm jaded and wishful for the weekend plans we had so carefully crafted for a birthday I really wanted to celebrate (and this is a very different desire from previous years).

Instead of celebrating the successful navigation of the past year with two nights on the local town, I find myself launched right back into last fall (different, but similar) left trying to muster up some normalcy. A good start is my friend Kristen is bringing macaroni and cheese on Sunday. Is there a better way to celebrate a birthday than with some comfort mac and cheese? We are also trying to see if we can still fit in a dinner downtown this weekend. We have to eat right? So what if I look a little scruffy and uneasy on the eye?!? I sh ant let the trials of this week totally unglue the purposeful intention of celebrating 38. But in all honesty, despite everyone telling me how stoic, positive, inspirational I can be, there is a side of me intertwined with all that positivity that feels a good bit bummed. Bummed! Jaded! Don't mistake it - I'm so grateful that God allowed option #1 to occur with  the introduction of boob 2.2 (instead of going 4 months with no boob at all where all you would see of me is BASKETCASE!), but I would have been perfectly fine with boob #2 and no surgery at all. I was floating along in a bliss of life is good, work is good, relationships are even better to now find myself sitting on a sofa infusing antibiotics 7 hours of my day, unable to drive, pulling at stitches, cleaning holes where drains once made their presence known, and fumbling with not being able to lift much more than 5 pounds. I want my independence back! I want my birthday weekend! I even want to be at work digging through the trenches with my team. I love that! ( I will deny it if ever asked in public). I DO NOT, however, want to be here. There it's said and out in the open.

Ok so now for the return of the silver lining positive focused Sally that we all know and understand. God is gracious. He has his purpose. I have met some amazing people in the hospital and have been re-reminded of the many friends that love me and would drop their schedule at a moments notice to provide me dinner or drive 45 minutes to visit me in the hospital. I love that! I've always been a person of relationships. They mean more to me than anything else this life can provide. Also, I've been working tirelessly, and maybe God needed me to slow down and be still. To know him as Father and Orchestrator of all things. And as I assumed from last fall during the mastectomy, maybe this journey still has absolutely nothing to do with me and everything to do with someone walking along side me. I should not be so prideful to assume this life is about me. Maybe the reason behind this journey to a new impostor boob will never be fully understood. But this I know, people have great hearts. They can be selfless, they can make life worth trudging through. If it takes boob 2.2 to remind me of this again for fear I had forgotten since last August, it is worth it. (I think!)

So let's raise a slice of cake to 38 (25) which will darken my door this weekend. And instead of mourning the plans uncelebrated (although there is still hope of propping me up in a theater seat with antibiotics), here's to a new boob the ripe old age of 5 days and to a new found remembrance of the meaning of relationships in life. I celebrate each of you! And if you need a reason to celebrate too, I offer up boob 2.2 as a reason to embrace life again. Let 2.2 remind you to accept the good and the bad as God has purpose in it all.

April 12, 2013 - 5 days post operation- Introducing the Picc Line

The picc line and infusion. Some have you have been asking, so what's better than a picture?
The line is inserted in the upper inner portion of my left arm. The ball you see is the vancomycin infusion that is infused by pressure created in the ball. Genius, huh?  The other antibiotic is administered on a portable pump. Two hours for the vancomycin, 0.5 hours for the zosyn three times a day. Then all the flushes and such and it makes for a fun morning and evening. 
Now to wrap it all in seran wrap and tape every morning so I can shower and keep it dry.
It really is a hoot and hollar around here.


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April 11, 2013 - Recap of the birth of Boob 2.2

April 11: We made it home yesterday, later than we would have hoped. By the time we got morning meds infused, waited for the surgeon to come by to pull the drain (have I mentioned how much I detest the drain but also detest the process of getting it pulled?), then waited for everything to be arranged through home health it was almost 2pm before we left the hospital. It was so great to be headed home. Just 5 days ago, on Friday, we were on our way out of town to visit my mom and our plans got derailed.

Let me back up a few days to give you the full story. Thursday afternoon I was sitting in clinic and noticed there was a spot on my breast that felt odd. You couldn't see anything on the surface, but underneath my skin there was an area about 3 inches x 3 inches that felt a good bit like a pulled muscle. But what an odd place to pull a muscle. I didn't think much of it, but as the day rolled on, with each hour it got more and more painful. Email to lead plastic surgeon where he asked me did I have fever (non), was it red or irritated (no), just muscle pain (yes), was it warm to touch. Now this is where the day had a little humor in it. For the life of me, I couldn't objectively tell if one was warmer than the other so I reached out to a coworker to "touch a fake boob" and tell me if one felt warmer than the other. She was happy to take one for the team because she knew the question was an important one, and yes in fact it was warm to touch. (and now she has that for her resume/cv). After we controlled our laughter, I emailed him back that yes one was warmer than the other. Watch and wait and call if it showed signs of redness or I got a fever. On my way home, the pain had spread from a 3x3 area to the entire boob and I was in tears trying to control the steering wheel. Got home, went to bed early and hoped rest would take care of the issue. If it was in fact a pulled muscle, I need to let it relax. Unfortunately, I tossed and turned all night because of the pain. Still no visible redness or fever.

Now it's Friday morning around 8 and Ron has already left for work. I knew I wouldn't be able to drive into work because the pain was so very bad. This was the first time i felt warm, so I checked my temperature to find I was febrile. Call to the surgeon again. "Sally, why don't you come in and let me check it out.You're right, it's probably nothing, but let's play it safe. I can fit you in a 12. See you then." I was quickly realizing I would probably need a dose of antibiotics for the fever then Ron and I could keep driving from the appointment to see my family. We packed a bag, loaded in the car and arrived at 12 for our appointment. Here we go again. As soon as I was in the office, I realized how much I had NOT missed the breast appointments. Ron helped me get into my gown where we immediately noticed the entire right breast was flaming red. (This had developed in the last hour). It was now obvious this breast "pulled muscle" was progressing by the hour. The surgeon walked in, I made him drop his dollar in the jar (just kidding!) and he examined the breast. The first thing out of his mouth. I need to admit you for cellulitis. So there you go, weekend plans ruined, and Ron and I head over to the hospital for what we thought would be about 24 hours of IV antibiotics then transition to oral antibiotics and head home. What an inconvenience for our restful weekend plans! And how did this happen????? we had such smooth sailing since October. Turned out, we are assuming that during a dental procedure I had 4 weeks ago, I must have absorbed some of the bacteria from my tooth and it settled into the Imposter. (this is documented in medical literature and the timing was perfect). The crazy thing is that I take antibiotics before every dental appointment to prevent this very thing. Well the prophylaxis let me down this go round.

We got to our room, a peripheral line was placed to get the first dose in then I was sent to the OR to get a central line placed for antibiotic administration. This was my first clue that 24 hours of IV antibiotics was not going to be my future. We got the line placed then watched as over the next 12 hours the redness continued to progress. The surgeon came by at 7pm and said he could decide in the morning if I was responding well enough to watch and wait or to if the cellulitis was progressing and I needed to go to the OR. Tails won and I was off to the OR the following morning. I remember them coming to get me and rolling me through the hospital to the OR, the OR doors opening and the nurse assigned to my case saw the tears rolling down my cheek. I don't know why now of all times it had hit me. I'm losing Boob #2! We had developed a bond, I had let it down, and now it was headed to the mortuary ( a little dramatized, but still...). I didn't know what the outcome would be. Lead Plastic Surgeon had said there would be 2 options and he wouldn't know up from down until he got inside and saw how extensive the damage was.

Option 1: The cellulitis is isolated to the surface of the skin thus leaving the implant intact. We could take the implant out- wash the area out- toss the Smooth Round High Profile Gel Implant- insert a brand new Smooth Round High Profile Gel implant - insert a drain and close me back up with stitches.

Option 2: The cellulitis is deep enough to impact  the tissue integrity and implant. Take the implant out. Leave the implant out for 4 months (hello, floppy boob), then go back in in the Fall and place an extender for several months to regrow the space, then later replace the implant.

Drum roll please- option 1 was the big winner, and therefore I was SUPER duper happy. Well as much as one could be having to do either option at all (which reminds me I need to get an updated Implant card...flashback to post last fall titled "card carrying member"). So five days later after getting nothing more than 1 hour of sleep in succession each night for five nights in a row I survived option #1, had a funeral for Boob #2, welcomed boob 2.2 to the family, had my drained removed and finally got discharged from the hospital. So here we sit at home with 3 hours of infusions in the morning, 45 minutes in the afternoon, and 3 hours again at night. take premed since you are allergic to both antibiotics, swab cap with alcohol, flush the line, hang the med (2 hours), flush the line, hang the med (0.5 hours), flush the line, insert heparin in the line, clamp the line, cheer for the success of the husband who has zero hospital experience and the wife who is used to being on the prescribing side of that medication dose. For two educated adults, we felt like brand new parents starring at umbilical cord of a new born baby wondering what in the world we were supposed to do. I've successfully navigated 1 infusion, and Ron has 1 under his belt as well. Score tied and 10 more days to go. Thankfully the home infusion nurse is coming today to take a peak at the central line which is oozing just a tad this morning. Surely not a reflection of our skills, but rather a reflection of yes there is in fact a whole in my arm with a line leading from the arm up through the top of the chest and dumping out very close to the heart. Why would it not be bleeding?

Peanut butter and jelly helps. And cut in triangles too. That was about all we could muster this morning. No worries. My friend Amy, lined up dinner deliveries for us so we can cut the chaos of our evenings in half. Sometimes you realize you are in fact an idiot when you think you are self sufficient. That revelation happened at about 11 pm last night.

April 9 and 10, 2013 - More updates



April 11: Somehow we accomplished last night. There was a learning curve. 3 hours of infusions. Had dinner at 9:15, in bed around 11. Too much! Got my infusions going this morning and now I'm bleeding from my central line. Health nurse coming to check it out. Not alot of blood at all, but some and there should be none. Maybe i should have stayed inpatient. Sure would have been easier on Ron and I. (now have new sympathy for my kiddos at work who do this around the clock) And then there is boob 2.2 that's still swollen and funny looking. Are we supposed to have football shaped boobs? The stitches gross me out. Come on 2 weeks. Come quickly.

April 10:  My kidney marker is still falling (serum crestinine 1.3) which is great news and I'm cleared to go home today. Just finished changing the dressing on my central line and now waiting for the surgeon to come take my breast drain out. Then i should be on the road. I may need one of you to bust into my bedroom once or twice each hour tonight so we feel like we are still here. Sleep deprived for sure. Wish us luck with the antibiotics. I've got my sister on speed dial.

April 10: The blessings keep coming. The nasty drain that I so very much detest is coming out today! Good riddance, sucker! Now I a chew toy to bite down on when they actually pull it. Content Truelove I think a bundle of twizzlers will do the trick just fine.

April 9: Headed home tomorrow. Nephrology doesn't have a cause for the kidney issues but they think it's short term and already improving, so we are released to our own doings tomorrow. Figuring out the med dosing tonight then we will be back to home. Wow, what was supposed to be a little check up, turned in to a 5 night hospital stay, a good bye boob #2, hello boob #2.2, welcome crazy med schedule, try to... balance that with what was already crazy, other wise normal Friday. To quote my nurse "enough is enough". So there you go. We are out of here sometime tomorrow. Then, we navigate the waters of antibiotics at home and a crazy schedule when we throw in work Whenever that comes. God is good. A big hill for me, simply part of his plans for Him. I shouldn't be grumpy. I should be 100% knowledge of this would all work out from the very beginning. And look at that, just as always, it did. And a new addition to the family (2.2) for fun. See you on the other side

April 9: Frustrated! Breath in, breath out. Trying to coordinate going home. We think everything we are doing here can be done at home, just a few logistical things to workout with home health and monitoring things to occur. I'm still trying to figure out how to fit the crazy antibiotic schedule into my life schedule. Particularly when back to work. Breath in, Breath out. One more time, breath in, breath out.

April 9: Nephrology came by - they are trying to figure out the kidney issues. They may want to do one more test and if that is the case I will stay inpatient until tomorrow. If they don't need that test, I might can go late tonight. Home health in the works and everyone between surgery, nephrology, and infectious disease is working on the plan. Cause you know I have to have a plan. The great news is that boob 2.2 is hanging in there like a champ! Now to make Ron a health care champ as well. Wonder how he will do with line care training.....I fear a line care spreadsheet will be my future if he has anything to do with it. Light-at-end-of-tunnel!

April 4-8, 2013 - Houston, we have a new problem


April 4 - So what wasn't supposed to happen, happened. Boob #2 is infected with cellulitis. The imposter is getting back at me for all the bad things I've said about it. Getting admitted to the hospital for some IV antibiotics.

April 5 - I've managed to avoid surgery this morning. He's made no promises though for tomorrow onward. My white count was a whopping 31. So that is some serious infection in there. Lead plastic surgeon wants to give both antibiotics another 12 hours to kick in, so I'm stuck here at least for today. Was hoping to go home this morning. Some improvement, but not enough for him to feel comfortable to let me do... the IV antibiotics at home. Re-evaluating this afternoon. Now would be a great time to bring boob #2 back into your prayer life. I do get a slight chuckle at how funny i might would look with just one boob. That could make for a few good moments of laughter/tears. Hugs to you and thanks for the ongoing support.

April 5- The redness had spread in the past 3 hours. Calling all prayer warriors! Please take my boob into your prayer closet.

April 5- Making the surgery decision tomorrow morning. If there is some improvement we might can watch and wait on iv antibiotics. If no improvement overnight, surgery it is. We don't know if will be one surgery and all is done or one surgery now and two more a few months down the road. Stay tuned. Keep the prayers coming.

April 6- Heads wins. Surgery at 2 (or earlier if they can slide me in). Now let's shift prayers that they can take the implant out, wash the area and culture it, then put a new one in right then. Best case scenario! You might see a grown woman in a tantrum if we pull this one out and have a 4 month waiting period. Back to your closets folks!


April 6- I woke up with a beautiful presence of God's peace. I know it's provided by Him through each of you as the whole network of relationships in my life have gone to their prayers closets on my behalf. I also know it's God given as I in and of myself have no earthly reason to be peaceful in this. Thank you, God, for the many reminders of the glory of your will and the futility of my own.


April 7- I find myself in great spirits. Family and friends gathered and laughing the morning away. These are those little blessing filled moments that polka dot the chaos and stand out in your mind years later.

April 8- There's something wrong putting something into your body fully knowing you are allergic to it. And not once, but over and over again. Very ready for this pathogen to declare itself so Boob 1 and Boob 2.2 (boob 2 met it's maker yesterday) can rest easy in their new living arrangements and we can skiddale with the antibiotics. I myself am still leasing a room at the hospital with at least 2 more day...s to go. (For the record: I'd step away from the dinner tray if I were you.) Working on home health arrangements so I can get the IV meds at home along with the comfort of my own cooking. Prayer request for today: that mom figures out how to operate the recliner. It's a hoot to say the least. I sent Ron home for some much needed rest so pray for that as well. And a secondary request: boob 2.2 remains uninfected and I make it through the antibiotic course all in one piece. Some of my lab markers are suggesting my kidneys don't like this one bit. Hanging in there all the same.

April 8- Yesterday while waiting it out in the recovery room after surgery, evidently I was intoxicated with anesthesia and somehow found myself leading 7 nurses and any number of patients in game of "gimmie an I (I!), gimme an M (M!) gimme a P (P!)...." Whatcha got? IMPLANT! Say it again! Inplant! One more time! Implant!....Yeah, that was me. Stupid me was overly excited I got the new implant instead of dead space in surgery and became uninhibited with the medication cocktail. And I followed it up with "Gimme a BOOB" once I got back to my own room. True story. Thankfully, everyone felt like playing along so I didn't look like an idiot by myself. Surely there is a note in my chart now that reads: Sally often has adverse effects to anesthesia.









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