November 26, 2014 - The Silent Spouse

Ron has a friend whose wife has breast cancer and recently underwent mastectomy. I've never met this couple, though I have prayed for them. Ron checked in on them a few weeks ago to see how surgery went. The response was similar to “…going well, we made it…!” Just this week we received a follow-up out of the blue that she was at that very moment being unexpectedly admitted for breast cellulitis.

My heart immediately sank as Ron told me the news. I knew almost to the letter what she was thinking and feeling. That fear of knowing you had made it through the tough surgery with flying colors only to find out you had an unexpected scary complication most likely resulting in a long course of antibiotics and potential removal of everything your breast surgeon had just finished adding. Your new breast is now defunct, damaged goods, lacking quality. It has found itself diseased with bacteria, and honestly …that just sucketh. Plain and simple. It is a bummer of bummers in breast surgery. You find yourself very close to where you started wondering if you have to do it all over again and the past many weeks falling dangerously close to wasted time.

I immediately recalled exactly what I felt, but was quite surprised to hear Ron continue the story without missing a beat to say “Sally, that was the scariest part of our journey for me.” And at that very moment the red light flickered in my head. The thing taken slightly for granted that surfaced from my subconscious. Ron, being the spouse, experienced the same journey and had his own emotions that are often missed in this process, much less supported and advocated for.  I had not really thought about the fact that there were moments he was scared, or worried, or frustrated and that he was often left to maneuver that alone. And more so that those moments of past impacted him enough to immediately want to reach out to this spouse to check on him and offer encouragement and support (which he did and it made my heart melt in love for him). I wish I could have him capture his experience on paper. I would like more insight into that, but I know this Ron and that he is very private and would struggle with finagling the thoughts to a written page. He processes in his own way and quite honestly doesn't adore the literary side of the world. But hearing his simplest of words (Sally, that was the scariest part of our journey for me) and propelling my thoughts to “our journey” (refocusing me that this wasn't my journey alone) and “for me” (bringing to my forefront that he had so much he was sorting through simultaneously as I was) now actuates me to want to advocate not only for the struggles of the woman in mastectomy, but the spouse who is just as blindly navigating something that he perceives to be scary and concerning and so many other things. He’s simply trying to get his wife through the experience intact, and I imagine that leaves him in all sorts of internal quandaries he never once utters aloud as he places her needs over his own. It is its own story. And I think that story virtually remains sadly untold.

This Ron is amazing. And I know I had the luxury of having the most incredible spouse at my side during this life event as he was selfless and supportive and kind beyond words during my emotional outbursts at crazy moments in the day. He changed bandages when I just couldn't bring myself to view the incisions and emptied drains hour after hour when I just couldn't get myself together. He missed sleep. And administered medications so I could get some rest. He cried when I cried. I realize not all men would be so stellar in such moments, but I don’t want to discredit that each spouse feels SOMETHING. The magnitude may vary, and the response will differ on a continuum from amazing to even less than stellar. But underneath the response we must realize there is a motivator. They feel something. Without realizing it, Ron highlighted that point in his concern for this husband and his wife now embracing breast cellulitis.  He very much wanted to support this man who in a flicker of a moment found himself mimicking a main character in our story. And in that role he most certainly would be feeling something.

I’m reminded that I am not a monologue, but instead one voice in a dialogue of many. There is a mother, a father, a sister, a brother, a child, and very much so a spouse who is swimming (dog paddling? gasping for air?) as fast as they possibly can in the very same stream and often in silence. I don’t want to forget that. And I want to advocate for supporting the many supporters of mastectomy, particularly the male spouse who may struggle in silence.

If you find yourself in prayer today, please add this friend and her husband to your words. I imagine they need a pick me up and a miracle of healing, both emotionally and physically. Underneath the silence of the one who supports you very well may lie a soul needing a little support of its own.




  

November 17, 2014 - Turning intentions into quilts

In the past week, I've learned of two new breast cancer diagnoses. It seems to be everywhere. 1 in 9 seems to be an inflated number as I have at least 7 women in my casual or immediate influence who have had the diagnosis and that is who was willing to make it public and I recall. I was particularly struck by one lady in particular who I actually have never met. I was told the story of several women whom got together to create a breast cancer quilt. Each woman working on the quilt had also survived the diagnosis and want to be a supporter of this lady. It was the cutest (albeit non-conventional) quilt covered in cartoonish drawings of various colorful bras. I can’t describe it adequately and that hilarity of the design, which was rather endearing an approaching adorable, isn't the point. The point is that these women got together purposefully, in measurable support, for another lady navigating the breast cancer map. To say I was touched is a lousy description. I kept coming back to the time and energy and purpose. They wanted her to have this quilt in time for her reconstruction surgery. So they set a goal and got it done. So many of you do that well. You see a need. You trampoline yourself right into the middle of it with intention. You show love at every turn and it’s almost auto pilot for you. I don’t know that I want the bra quilt itself (or maybe I do, it was quite magnetic in its draw almost a trance you didn't know you desired) but I know that I want to exude that sort of support for other people. And I fall short of this on almost every level with missed opportunity after missed opportunity. My well intentions become exactly that…intentions. Woe is me.

And therein lies the question, how do I become less “me” focused as I traverse my every day and instead become more focused on you and whatever event is at your doorstep? Isn't that what we all should be about? God commands not only to intentionally love others, but to love them as you love yourself. Screeching halt! I love myself, A LOT! I can even dare say I love others, but how do I show radical love (inconsistent with today’s society) and support consistently, intentionally, and regardless of whether I get love in return. And how can I ensure that love is a priority for me and not just a well intention? It certainly is not innate in me. Well the love is innate, I’m rather good at that, but the active showing of that love often finds itself with the dirty laundry (which I also had intentions of washing last week) in a heap on the floor. This I know….I am really good at thinking about you. I may even drop a card in the mail to you. I cry behind closed doors for you. But am I going to sit for hours on end quilting a bra quilt for you? And with the goal of no personal gain and instead to brighten your day in the midst of your diagnosis? Oh I want to be these women. I want to be more than a few encouraging words found on the pages about Christmas Boobs, or Impostor (implant) ID cards, or concave chests and tears in the shower. I want the drains to be circumstance that fuels action instead of passive words from me to the screen. I certainly don’t want to fail you in your time of need, whatever that need may be. And I painfully know I have failed many of you in the past. I don’t know the breast cancer diagnosis, but I know the road to and from mastectomy. It would be a lost journey if I didn't translate that into measurable love and active support for you and yours. So this is what I am working on. Less passive. More active. Love you more than I love me. “Bra quilts” to show you I mean business. I promise you no bra quilt, but I do promise you I am working hard to be selfless. These boobs shall carry me! (How would you like to see that on a calling card? Mercy! Would you not immediately catapult it into the trash and call for backup! My apologies. Laughing all the same). Just a little insight of life application going on for me right now.

And to the Impostors. Surgery #5 is tidied up in a big red bow and ready for send-off. The fog has lifted and sunny skies are forecasted, meaning I am no longer running into door frames or answering “apple” when you ask me where the sticky note pack is. As delightful as that was, I no longer want to experience that and will have to be losing liters of blood and at risk for death to go back to the operating table. Implants that have fallen to the knee cap can be its own fashion trend and will certainly make gardening or installing hardwoods much easier for me. I will not go back to the OR! (Famous last words, right?) I still have the stitches, which should dissolve after about 12 weeks. I don’t love them. But nowhere, that I am aware of, is it commanded to love your stitches, so no judgment please. They get caught on stuff and the tugging is less than fabulous. I am a weakling with incisions, this is no new revelation to you, and it is what it is. This changed with mastectomy for whatever reason. They sit there underneath the sports bra and I tolerate them. I go back to the surgeon in January for another follow-up. I haven’t yet decided if I will actually go (wink).

Mastectomy is complete, and because of reconstruction I have perky boobs. If only it could be summed up truthfully in that one little sentence as if it was a piece of cake. Oh how much I have learned.


Matthew 22:36-40: 36 “Teacher, which is the greatest commandment in the Law?” 37 Jesus replied: “‘Love the Lord your God with all your heart and with all your soul and with all your mind.’[a] 38 This is the first and greatest commandment. 39 And the second is like it: ‘Love your neighbor as yourself.’[b] 40 All the Law and the Prophets hang on these two commandments.”

Galatians 5:14:  For the entire law is fulfilled in keeping this one command: “Love your neighbor as yourself.”


(See Matthew, Mark, Luke, Galatians, James, Romans for more instances of this command).